Update on Thing Two

[Pete at Home]

As ugly as the election is, it's a nice distraction to me from what's happening to Thing Two. He's not only been kicked out of another care facility, but they insist on doing it THIS MORNING, and I didn't get notified until 1pm to see if I could come back from Utah today instead of tomorrow. (hint: the plane was to at 2PM from an airport an hour's drive away from me).

The vaccination compensation program is a complete joke. Vaccination is based on the principle that although you damage, and sometimes kill a few children, that in the balance of things you're helping out a lot more children. OK. I can accept that. But it seems to me that if the state cripples my child and reduces him to a state of lifelong torture, on behalf of the community at large, that they owe him care and comfort and any available treatment, and reasonable access to his family.

This election's not going to change that.  On a day that other Americans are celebrating the cracks in the glass ceiling, my son has fallen through the cracks in the deepest basement floor.

[Fenring]

Which vaccine was that?

[Pete at Home]

MMR vaccine.  The trouble is that he was misdiagnosed with Autism (which is mostly med-speak for "I have no idea what the hell is wrong with this child") and the courts were freaking out about it since they had ruled that autism can't be caused by the MMR vaccine.  But the fact that ENCEPHALITIS can be caused and IS caused in 1 in 2 million children that receive the MMR Vaccine is not even contested; the manufacturers even post that as a possible side effect in their own materials.  X rays show that Thing Two has Limbic Encephalitis.  Congress passed legislation that you can't sue vax companies for brain damage to a child so we had to go through the vaccine compensation program.  They wasted 8 years and shuffled it between four judges, switching judges when one made findings in favor of us.  And finally sent it to the judge that had made the autism/mmr ruling in the first place.  The government whore, I mean expert physician, went back and forth saying Thing Two had autism, then he didn't, then went back to autism again, as he sifted out the Judge's ruling.  But the Judge held that the government witness was the only one worth listening to because ...

I can't do this right now.

[Pete at Home]

"I am living, I am living, in the time of the butterfly, and the wind's not gonna change me anymore."
-Thing Two, four months before a vax induced autoimmune disorder took out the limbic area of his brain.

[scifibum]

I'm sorry, Pete.  It shouldn't be like this.

[rightleft22]

Sorry to hear about the challenge you are facing.

Not that this has anything to do with your post

Currently reading Language Arts by Stephanie Kallos about a father with a autistic child  and "how we communicate with or without language, how we connect with other human beings"
Its a slow start but well worth pushing through and its made me rethink or re-imagine what it might mean to raise a child that you can't communicate with.

Also re-reading Philip Simmons 'Learning to Fall: The Blessings of an Imperfect Life'  because I don't understand why these things happen.

[Pete at Home]

I sometimes get through to him with singing.